I’ll bite. I had a brother with special needs pass away a year ago next week. He was born with cerebral palsy, was blind, nonverbal, totally dependent on caretakers (myself, my siblings and mother, his nurses) for literally everything since he didn’t have functionally-independent motor control. We were told he’d live to 10, and he lived to 29; he was a bundle of joy and loved going out when he could. People would stare and kids would ask questions, but we loved sharing his story and my brother liked when people were curious about it.
But, his health started declining in 2014. He had several close calls, and we told doctors each time to try their best with the circumstances they were given. On more than one occasion, his nurses or our mother would actually be with the doctors during hospital stays to assist with him since he was case they didn’t have much experience in and didn’t want to make his issues worse. That said, he had a DNR (Do Not Resuscitate) since he had a trache, and was brittle enough to die from chest compressions.
I prepped for my brother’s death countless times over 8 years. We all did. When he passed, we were so obviously distraught. But we were also relieved, in a way, that he wasn’t in pain anymore in the end. We let out our emotions that had been stored for those years, and the grieving process is still continuing. We all put our lives on hold to help him, and he just became our lives; our goal simply was to make him comfortable and let him know he was loved, knowing we couldn’t realistically do more. We spent years watching him in pain, watching him gradually lose his fervor and personality.
If you read this far, thank you. Not really sure what else to say, I just want to share this since it’s occupied my mind a lot.
TLDR; Preparing for the worst outcomes, coupled with grief, over prolonged periods of time really disrupt your emotions and outlooks. Needless to say, my family became stronger proponents of state-assisted suicide after this experience. It couldn’t be granted to my brother, but maybe we can help people in the future that coupd really use it. People understand, but not nearly as many are truly empathetic because they can’t be - they’ve never been through a similar experience. I simply ask that people try to be sympathetic rather than to pass judgement on others.
I understand the weird feeling of relief when someone dies. I know that sounds terrible. My situation was not yours, so I’m not directly comparing. One of my parents had long, slow cancer. Watching them waste away, choosing to fight a symptom or not, was draining and difficult. In one sense, I enjoyed all of those final moments and would give anything to have more. I miss them dearly. However, I’m glad they’re not suffering. It was difficult at the end. Their quality of life was not good.
I wouldn’t say nobody, but I would say the people that dominate the area I’m trying to volunteer and work in.
I work in a healing center where there are 29 women on staff and 1 man.
I cannot get these people to understand that as much as they want to push forward social movements, which I very much agree with, this must not come at the expense of men who are trying to heal.
I will literally have counselors co-facilitating with me, who want to make every point about how women are oppressed, pushed down in the workforce, face issues.
I’m not in denial of those, but no man coming into a healing environment to work on themselves, be vulnerable, and explore their own journey, needs to hear how much men are shitty.
They say that to the patients? That sounds incredibly unprofessional.
It’s insane, I even made a complaint to the director who of course is a woman, and she effectively denied that it was happening or could happen.
I told her I don’t even want people not to think these things, everybody who is in their own place of trauma has to get their shit off their chest.
All I wanted was a place where men didn’t have to hear this crap.
And that’s being incredibly neutral in my opinion because there are a lot of opportunities for men to talk about just how insane and shitty women can be. But I don’t want to talk about those things, I just want them to stop shit talking men especially their own clientele.